Sunday, July 22, 2012

Some of the strongest people I know have a mental disorder

     My daughter, Sami, was supposed to go to girl's camp last Monday. She went to camp last year and had some hard, lonely experiences but she was trying to get past it to go to camp this year. She had her bags packed 4 days before camp and she talked about camp with excitement (most of the time). The night before she would leave she broke down. This is not unusual for Sami. You see, Sami has Generalized Anxiety Disorder. Most people just think this is another way of saying she is afraid of a lot of things. It's actually a lot more than that. Nobody has any idea how hard the every day little things are for her and for others that suffer from some type of mental disorder. For Sami, she worries about things that no 13 year old should have to worry about. Her worries for camp included: What if I get altitude sickness? What if I get bit by a poisonous spider? What if we are in an accident on the way there? What if I get food poisoning? What if I need to come home? What if I have no one to talk to? And the list goes on and on. Every time she would come to me with a worry I would try to logically talk her through it. The problem is that anxiety disorders are not logical. You can't just talk the worries away. That's the difference between an everyday fear and an anxiety disorder. I get frustrated that people label Sami and others as afraid of everything. Sami is actually a very brave young lady. Even though she walks through every day of her life worrying about hundreds of things, she keeps trying, keeps moving forward, and does not just let the anxiety win. Sometimes the anxiety is more than her young 13 year old mind can push through but that does not make her weak and afraid. It means she has already fought it and fought it as much as she possibly can and it has worn her out. At these times, Sami is heart broken. She knows that her disorder has taken another opportunity from her to be a normal young lady. This was how she felt on Monday morning when it was time to climb in the cars and after fighting and fighting her anxieties, she couldn't do it. The way that some people responded to Sami's inability to follow through and go to camp made me realize that many people just don't understand mental disorders. Having a panic disorder myself and knowing many wonderful, strong, courageous people with mental disorders I have found some things that seem to be good rules to remember:

1. Mental disorders are no different than any other disease in that they are not something the person can easily (if at all) control. Would you expect someone with diabetes to force themselves to stabilize their insulin levels? It's no different with a mental disorder. People think that because our minds are so strong, those with mental disorders should be able to talk themselves out of their feelings. What they don't understand is that our brain is the part of our body that is malfunctioning at these times.

2. People with mental disorders are not just trying to get attention. They often do not want the attention brought on by a break down, panic attack or some other symptom. They wish they could hide where no one could see what they are going through but many times the situations that trigger a break down are caused by the stress of others expecting something from them that they can't do. Therefore they find themselves feeling on display for others to judge their inadequacies. If possible, give them space to fight through what they are dealing with without feeling awkward and embarrassed about being observed.

3. The symptoms of mental illness many times seem illogical because they are. Don't be offended if your attempts at logically talking someone out of their feelings doesn't work. The last time I had a panic attack I was on my way to a bridal shower. There is nothing logical about panicking about a bridal shower. It made no sense to me and therefore there was no logical way to "talk me through it".

4. People with mental disorders are actually fighting their disorder all the time. They don't always show or tell what is going on in their mind. Imagine if you were fighting an internal fight all of your waking hours. It can make you grumpy, irritable and sometimes selfish. Do not take this personally or make someone feel like they have disappointed you. Just give them space to work through things. Here again, would you expect someone with cancer to have energy all the time? Would you fault them for those times that they are too tired to accomplish anything? It is the same for those with mental disorders. Their symptoms are directly linked to their disorder. Sometimes just waking up and putting one foot in front of the other and trying to fake their way through a day is all they can handle.

5. The most important thing is to just love them. Don't expect more than they are capable of. Don't judge them. Don't make them feel like a freak because they are not "normal". Do not talk about them behind their back. They did not ask for this but are doing the best they can. Just love them. Because the truth is they have a hard time loving themselves and they need to know someone believes in them.

9 comments:

  1. Wonderful post, Pauleen. Sami is so blessed to have you as her loving and understanding mother.

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  2. While I agree that we need to be understanding of those with mental instabilities, at what point to do you help your child over come and live their life? Is she going to always live in fear? That fear can be debilitating, but you don't want your child to live in a box. The bottom line is Sami made a commitment and didn't follow through. As a result, the entire group suffered. They didn't get to see Sami's amazing spirit, and spend time getting to know her better. Both parties lost in this situation. Sami didn't get the opportunity to grow and learn, and the Young Women didn't get to know Sami. As you said, this disease can create character traits and situations where outsiders do not understand the feelings and fears of the individual. I am willing to bet that these issues were a large part of her experience last year at Camp.
    My little brother has Autism and on top of it does suffer from an anxiety disorder. You have no ideas the struggles he goes through. His Autism creates a mental state where he doesn't know how to socialize with other people, and his anxiety can cripple his ability to try. My brother has been in school since he was two years old, and has been mainstreamed since Kindergarten. He goes to all his mutual activities and is very active with other kids his age. Is that easy for him? No. Does he have anxiety attacks still? Yes. This is not a fixable problem. He will suffer for the rest of his life, but he isn't held back by his disorders.
    You may disagree with me, but Sami doesn't have to be a prisoner of her disorder, and I would hope that for her sake, she is able to overcome some of her fears. Sami has the opportunity to teach those around her, and help them understand her struggles and the struggles of millions of others. But, she cannot do that if she doesn't go to activities. She can't teach if she isn't present.

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    1. Im not sure who you are but you obviously do not know Sami at all!!!!!! How did Sami not going to camp affect you in any way? you have tons of opportunities to get to know Sami if you really wanted to, but you must not take those opportunities. Sami is a very strong and loving person who overcomes anxieties and fears on a daily basis. If you took the time to know her you would know this. If you are in sami's ward then you must not be taking anytime to pray about what you are saying because you are dead wrong. By you posting this you are now singling sami out and making her feel even less understood and a lot more judged. We should love one another and work to reach out to each other so we feel comfortable not judge each other. How are you achieving the goal of reaching out to Sami by judging her motives or intent? Did you personally call her and ask her what she has been through? You can't compare your brothers disorder to Sami's everyone is different. By the way you have acted I can see exactly why Sami doesn't want to take part in your wards activities you guys obviously don't have a spirit of love and understanding. I wouldn't want to go anywhere with you guys either.

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    2. Dear Jane Doe, I find it interesting that you have such strong opinions about this and yet you did not sign your name. I can assume who this is and that makes this post even sadder to me. I know those that Sami has felt have been kind to her and if this is who I think it is, she is going to feel even more ostracized from the ward. My reason for writing this post ( and trust me when I say I thought and prayed long and hard before writing it) was so that people that are around Sami a lot could understand her better. Obviously, that is not the case with you. I hope your view is just the view of one single person and not the consensus of those in the Young Women of our ward. In case you missed it, my title on this post was "Some of the strongest people I know have a mental disorder". It seems to me that by the comments you have made about your brother you must feel the same way. The only difference between you and I is what we see as success. I think it is great that your brother is living up to your idea of success, especially because if he wasn't he would be facing the same judgments from you that have been singled out for Sami. I see Sami as an extremely strong person. Because of her experiences at camp last year, she didn't want to go to camp AT ALL this year. The leaders and the girls kept coaxing her and trying to make her feel like they wanted her there and she finally agreed that she would try to go again. She put aside fear after fear to prepare herself in any way she could to go. In the end, she was up most of the night dealing with anxieties which in turn made the anxieties worse because she had no sleep. I honestly don't think you care about the whys, though. You seem to have an agenda and I don't think it has anything to do with trying to understand any of this. I think you have your own ideas and I have mine. Sami is in no way allowing this to imprison her. She has many friends and lives, for the most part, a very full life. Just because it's not all in front of you doesn't mean it doesn't happen. Just because she didn't go to camp doesn't make her any less strong in my eyes or the eyes of those who truly love her and want to understand her. The fact that that is not you is something I can live with and so can she. My only wish for you is that you are not plagued with something similar at some point in your life. It's not as easy to live with it as it is to sit back and judge it.

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    3. That was me, Pauleen, that sent the above comment by Hear Us Roar.

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  3. Just from the comment you made it tells me that you obviously do not suffer personally from any sort of mental disorder. Otherwise you would not be so callous in the remarks you make. Unless you personally have gone through the same thing Sami has, you have no right to judge her. Sami is an extremely strong young women who suffers from a real disability. And she does not let herself become a prisoner of her disorder, in fact I can name off of the top of my head 100 times Sami has overcome her anxiety. This was one instance where the anxiety overcame her.

    I realize you have a brother with Autism, and he also suffers from anxiety. BUT he is not Sami, every case is different and in my opinion you have no reason to judge her. Perhaps you should get to know Sami better.And by this comment no wonder she didn't go to girls camp.

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  5. Being a mother is a beautiful gift that God bestows upon us. We each have the ability to be intune to the needs of our own children, something that only mothers understand. Of coarse our responsibility is to help them grow & reach outside of what they think they can do when we feel it's appropriate. I feel bad that Sami wasn't able to go to camp. I know she had fun last year as well as some difficult times. No matter what people may or may not think about the situation it is not their call. Only you (Pauline) are the mother of Sami & it is your call. That needs to be respected.

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  6. Dear "Jane Doe",

    Did you choose to leave your name out of your response because you knew how naive it makes you sound? We are ALL entitled to our "opinions," but I would strongly encourage you to do some research prior to posting completely callous and uneducated responses!

    Brittanie Knezovich

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